https://sajcd.org.za/index.php/sajcd/issue/feedSouth African Journal of Communication Disorders2024-03-24T12:39:45+01:00AOSIS Publishingsubmissions@sajcd.org.zaOpen Journal Systems<a id="readmorebanner" href="/index.php/sajcd/pages/view/journal-information" target="_self">Read more</a> <img style="padding-top: 2px;" src="/public/web_banner.svg" alt="" />https://sajcd.org.za/index.php/sajcd/article/view/1046Erratum: Why do people who stutter attend stuttering support groups?2024-03-24T12:39:45+01:00Nicola E. Bloyenicola.bloye@gmail.comShabnam S. Abdoolashabnam.abdoola@up.ac.zaCasey J. Eslickcasey.eslick@smu.ac.za<span style="font-size: medium;">No abstract available.</span>2024-03-22T15:28:00+01:00Copyright (c) 2024 Nicola E. Bloye, Shabnam S. Abdoola, Casey J. Eslickhttps://sajcd.org.za/index.php/sajcd/article/view/1008Communicative practices and perceptions towards stuttering people in South Africa2024-03-22T12:38:49+01:00Rockie Sibandarsibanda@uj.ac.zaTlou C. Mothapocathymothapo99@gmail.com<p><strong>Background:</strong> A few studies have explored the life experiences of people who stutter. Research has shown that stuttering affects a significant number of people in the population.</p><p><strong>Objectives:</strong> The study was designed to explore the experiences of people who stutter and the perception of stuttering in South Africa.</p><p><strong>Method:</strong> Four people who identified as South Africans who stutter participated in this study. The primary investigator conducted semi-structured interviews with each of the participants. In addition, a questionnaire was administered to 20 acquaintances of all the participants. Transcriptions of interviews and results of questionnaires were analysed for major and minor themes.</p><p><strong>Results:</strong> Results of this study suggest different perceptions by those who stutter and those acquainted with them. The findings of the study show that people who stutter experience communication barriers, so they adopt certain strategies to manage and cope with their speech disorder. The findings showed that stuttering has a pervasive impact on the lives of people who stutter and how they view themselves, considering negative societal views.</p><p><strong>Conclusion:</strong> Evaluation of the results from the study reveals that although stuttering is a common speech disorder, many people who are less informed about it harbour various stereotypes and myths that stigmatise stuttering. This study concludes by outlining recommendations for creating awareness of stuttering. It suggests vigorous campaigns aiming at promoting a multilevel approach that extends beyond the mere social and professional understanding of stuttering but addresses the inherent perceptions, myths, and stereotypes around stuttering.</p><p><strong>Contribution:</strong> Experiences of people who stutter and perceptions towards stuttering can help to better understand the speech disorder and overcome myths and stereotyping of stuttering.</p>2024-03-22T08:00:00+01:00Copyright (c) 2024 Rockie Sibanda, Tlou C. Mothapohttps://sajcd.org.za/index.php/sajcd/article/view/1002Help-seeking journey to accessing audiology services in a peri-urban community in South Africa2024-03-20T12:37:58+01:00Thobekile K. Mtimkulukuthimti@yahoo.comKatijah Khoza-ShangaseKatijah.Khoza-Shangase@wits.ac.za<p><strong>Background:</strong> Hearing impairment is an invisible disability affecting one in five people globally. Its ability to affect participation in activities of daily living means that it requires prompt identification and intervention.</p><p><strong>Objective:</strong> This article aims to define the process of accessing audiologists from the onset of symptoms for adults with hearing impairment in a peri-urban community in South Africa.</p><p><strong>Method:</strong> Twenty-three participants were recruited through purposive sampling from an audiology department of a public hospital. Semi-structured interviews were conducted using an interview guide, and data were mapped according to the participants’ responses from the onset of ear and hearing symptoms to the point of audiologist consultation for analysis.</p><p><strong>Results:</strong> Seventeen (74%) participants had long journeys to accessing the audiologist after seeking help from multiple providers, with those with short journeys (26%) being referred mostly by public healthcare providers. Despite participants being from one peri-urban community, their journeys were influenced by socio-economics, health illiteracy and other structural factors. Finally, Ear-Nose-Throat specialists linked participants with audiology services.</p><p><strong>Conclusion:</strong> Accessing audiology services is a complex process in some contexts. The disparities in the social environment, lifestyle factors and pluralistic healthcare models influence access to audiologists. Healthcare providers must take cognisance of the journeys of adults with hearing impairment in their clinical interventions. Universal health coverage, in the form of the planned National Health Insurance (NHI) for all South African citizens, will play an important role in addressing the societal inequalities in accessing healthcare. Factors leading to long journeys should be addressed to facilitate early intervention.</p><p><strong>Contribution:</strong> The study raises implications for the planned NHI in South Africa, suggesting that universal health coverage could play a vital role in addressing societal inequalities in accessing healthcare, including audiology services.</p>2024-03-20T06:00:00+01:00Copyright (c) 2024 Thobekile Kutloano Mtimkulu, Katijah Khoza-Shangasehttps://sajcd.org.za/index.php/sajcd/article/view/992A call for linguistic and culturally congruent family-centred early hearing detection and intervention programmes in South Africa2024-03-20T12:37:57+01:00Ntsako P. Malulekeprecious.slp@gmail.com<p>Early Hearing Detection and Intervention (EHDI) programmes are recognised as the standard of care for newborns and infants presenting with hearing impairment, globally. However, widespread implementation of these programmes is far from being realised and faces numerous challenges within the South African context. The United Nations’ sustainable development goal 3.8 and South Africa’s national development plan seek to achieve equitable access to healthcare service, including EHDI. However, healthcare access is a complex concept which encompasses the dimensions: availability, affordability, acceptability and accommodation in healthcare. South Africa has made great progress towards universal implementation of EHDI programmes. Despite this progress, availability and affordability of these programmes are limited and their acceptability has received limited research focus in this context. Furthermore, accommodation of caregivers, as co-drivers of EHDI programmes and ensuring that EHDI programmes are linguistically and culturally congruent have also been overlooked within the South African context.</p><p><strong>Contribution:</strong> Increased robust efforts in improving access through availability and affordability of EHDI programmes are warranted in South Africa. However, improving access to these programmes through availability and affordability initiatives alone will not result in a pragmatic improvement in their accessibility. Acceptability of these programmes and accommodations such as involving caregivers and family members of children with hearing impairment as equal partners in EHDI programmes and being cognisant of their linguistic and cultural needs must be considered.</p>2024-03-19T09:00:00+01:00Copyright (c) 2024 Ntsako P. Malulekehttps://sajcd.org.za/index.php/sajcd/article/view/1001Who really decides? Feeding decisions ‘made’ by caregivers of children with cerebral palsy2024-03-18T12:37:36+01:00Lavanya Naidoolavanya.naidoo@wits.ac.zaMershen Pillaym.pillay@massey.ac.nzUrisha Naidoonaidoou@ukzn.ac.za<p><strong>Background:</strong> There are no definitive guidelines for clinical decisions for children with cerebral palsy (CP) requiring enteral feeds. Traditionally, medical doctors made enteral feeding decisions, while patients were essentially treated passively within a paternalistic ‘doctor knows best’ approach. Although a more collaborative approach to decision-making has been promoted globally as the favoured model among healthcare professionals, little is known about how these decisions are currently made practically.</p><p><strong>Objectives:</strong> This study aimed to identify the significant individuals, factors and views involved in the enteral feeding decision-making process for caregivers of children with CP within the South African public healthcare sector.</p><p><strong>Method:</strong> A single-case research design was used in this qualitative explorative study. Data were collected using semi-structured interviews and analysed using reflexive thematic analysis.</p><p><strong>Results:</strong> Four primary individuals were identified by the caregivers in the decision-making process: doctors, speech therapists, caregivers’ families and God. Four factors were identified as extrinsically motivating: (1) physiological factors, (2) nutritional factors, (3) financial factors and (4) environmental factors. Two views were identified as intrinsically motivating: personal beliefs regarding enteral feeding tubes, and feelings of fear and isolation.</p><p><strong>Conclusion:</strong> Enteral feeding decision-making within the South African public healthcare sector is currently still dominated by a paternalistic approach, endorsed by a lack of caregiver knowledge, distinct patient-healthcare provider power imbalances and prescriptive multidisciplinary healthcare dialogues.</p><p><strong>Contribution:</strong> This study has implications for clinical practice, curriculum development at higher education training facilities, and institutional policy changes and development, thereby contributing to the current knowledge and clinical gap(s) in the area.</p>2024-03-18T09:00:00+01:00Copyright (c) 2024 Lavanya Naidoo, Mershen Pillay, Urisha Naidoohttps://sajcd.org.za/index.php/sajcd/article/view/1010Swallowing and feeding of young children on high-flow oxygen therapy2024-03-03T12:31:55+01:00Ruhee Hoosainhoosainruhee@gmail.comBhavani Pillaybhavani.pillay@up.ac.zaShabnam Abdoolashabnam.abdoola@up.ac.zaMarien A. Grahammarien.graham@up.ac.zaEsedra Krügeresedra.kruger@up.ac.za<p><strong>Background:</strong> Oral feeding practices of young patients on high-flow oxygen (HFO<sub>2</sub>) have been controversial. Limited literature exists on this topic, but new studies suggest introducing oral feeds.</p><p><strong>Objective:</strong> This study aims to describe the changes in swallowing and feeding of a group of young children on HFO<sub>2</sub>.</p><p><strong>Method:</strong> Twelve participants (mean age 34.17 months [s.d. = 3.97]) on HFO<sub>2</sub> were assessed clinically at the bedside using the Schedule of Oral Motor Assessment. Assessments were conducted twice to determine the change in characteristics: upon approval from the managing doctor when respiratory stability on HFO<sub>2</sub> was achieved and for a second time on the last day of receiving HFO<sub>2</sub> (mean 2.6 days apart). Patients received standard in-patient care and speech therapy intervention.</p><p><strong>Results:</strong> Most participants displayed typical oral motor function at initial and final assessments for liquid, puree and semi-solid consistencies. Purees and soft solid consistencies were introduced to most participants (<em>n</em> = 11, 91.7%). Solids and chewables were challenging for all participants during both assessments. Half of the participants displayed gagging and a wet vocal quality with thin liquids at the initial assessment only.</p><p><strong>Conclusion:</strong> This small-scale study found that HFO<sub>2</sub> should not preclude oral diets, but in this sample, small amounts of oral feeding could be introduced with caution, in an individualised manner, and with a collaborative multidisciplinary approach. Further research is essential.</p><p><strong>Contribution:</strong> Partial oral feeding of specific consistencies was possible during the assessment of young paediatric in-patients on HFO<sub>2</sub>. Monitoring of individual patient characteristics and risk factors by a specialist feeding team is essential.</p>2024-03-02T11:00:00+01:00Copyright (c) 2024 Ruhee Hoosain, Bhavani Pillay, Shabnam Abdoola, Marien A. Graham, Esedra Krügerhttps://sajcd.org.za/index.php/sajcd/article/view/989Enhanced Milieu Teaching in resource-constrained settings: Stakeholder-informed adaptation guidelines2024-03-01T13:39:18+01:00Chevonne D. du Plessischevonne.speech@gmail.comLauren H. Hamptonlaurenhhampton@gmail.comMichal Hartymichal.harty@uct.ac.za<p><strong>Background:</strong> Enhanced Milieu Teaching (EMT) is an evidence-based naturalistic developmental behavioural intervention (NDBI) for children with developmental disabilities. Little is known about the EMT’s fit or what adaptations might be needed to improve its applicability within a resource-constrained setting.</p><p><strong>Objectives:</strong> To explore stakeholders’ perceptions of the contextual fit of EMT for young children with developmental disabilities in a resource-constrained context and to identify adaptations to improve EMT’s contextual fit.</p><p><strong>Method:</strong> We conducted a descriptive qualitative study using semi-structured interviews and focus groups. Participants included 5 speech and language therapists and 11 caregivers of children with developmental disabilities who speak English and Afrikaans or isiXhosa. Using thematic analysis, data were coded into 10 subthemes and grouped according to the Adaptome framework components.</p><p><strong>Results:</strong> Overall, stakeholders view EMT as an appropriate intervention in the South African context. They indicated that certain intervention components may need to be modified. Specifically, clinicians may need to adapt intervention materials and activities to be sensitive to families’ available resources, preferred activity routines and priorities. From these data, we provide guidelines to improve the fit of EMT in South Africa.</p><p><strong>Conclusion:</strong> Enhanced Milieu Teaching is an appropriate intervention in the South African context, although some adaptations can enhance its fit.</p><p><strong>Contribution:</strong> This article highlights the importance of engaging with stakeholders to determine the fit of NDBIs, like EMT, as they are implemented in new contexts. Based on these insights, stakeholder-informed adaptation guidelines are provided for improving the contextual fit of EMT in resource-constrained settings.</p>2024-02-21T06:05:00+01:00Copyright (c) 2024 Chevonne D. du Plessis, Lauren H. Hampton, Michal Hartyhttps://sajcd.org.za/index.php/sajcd/article/view/1005Outcomes and device use in children with bone-conduction hearing devices in South Africa2024-03-01T13:39:18+01:00Chéri van Zylcheri.vanzyl@westerncape.gov.zaChristine Rogerschristine.rogers@uct.ac.zaSilva Kuschkesilva.kuschke@hearxgroup.com<p><strong>Background:</strong> Bone-conduction hearing devices (BCHD) can provide hearing solutions in settings where middle ear pathology is rife.</p><p><strong>Objectives:</strong> Describe functional hearing outcomes and device use of children fitted with BCHD.</p><p><strong>Method:</strong> Retrospective review of 79 children fitted with BCHD between January 2017 and May 2022. Outcomes included device use and subjective reports measured with the Parents’ Evaluation of Aural/Oral Performance of Children (PEACH) and the Teachers’ Evaluation of Aural/Oral Performance of Children (TEACH). Analysis of variance established association between mean data logging and type and degree of hearing loss. Thematic analyses were done for qualitative outcomes.</p><p><strong>Results:</strong> Average usage was 7.0 h/day (5.4 SD; range 0.1–24). PEACH ratings indicated 93.3% of children wore their BCHD ‘always’ or ‘often’, with 80% displaying Typical auditory performance at 1-month follow-up. TEACH ratings indicated 84.2% of children wore their BCHD ‘always’ or ‘often’, with 78.9% showing typical auditory behaviour. Increased usage was noted for conductive, mixed, moderate and severe hearing losses. There was a mean delay of 17.2 months (23.4 SD; range 0–90) between age of diagnosis and fitting. Thematic analyses identified two main themes: advantages and barriers to BCDH use.</p><p><strong>Conclusion:</strong> Average device use fell short of the internationally recommended 10 h/day. Higher BCHD use was associated with higher functional listening performance scores. Long waiting times for medical or surgical intervention for conductive hearing losses can delay BCHD fitting.</p><p><strong>Contribution:</strong> Limited information is available to examine outcomes in children fitted with BCHD.</p>2024-02-19T08:00:00+01:00Copyright (c) 2024 Chéri van Zyl, Christine Rogers, Silva Kuschkehttps://sajcd.org.za/index.php/sajcd/article/view/990Exploring quality of life post sudden onset hearing loss: A convergent parallel approach2024-03-01T13:39:18+01:00Liepollo Ntlhakanaliepollon@gmail.comSabeehah Hamidsabhamid5@gmail.com<p><strong>Background:</strong> Sudden onset hearing loss (SOHL) is rare and presents differently to individuals; hence, it is complex to diagnose. The impact on the quality of life (QoL) varies for individuals and their support structure. However, the exploration of research designs is warranted.</p><p><strong>Objectives:</strong> This study explored the lived experiences of adults post-SOHL diagnosis and the impact on the QoL. Facilitators of emotional and social aspects of counselling provided by audiologists post-SOHL diagnosis were established.</p><p><strong>Method:</strong> This was a convergent parallel research study. Data were collected from the two primary participants and three secondary participants, face-to-face and telephonically. The Hearing Handicap Inventory for Adults (HHIA) screening tool and the semi-structured interviews were used for data collection. The data sets were analysed independently, <em>viz</em>. descriptive analysis and thematic analysis, to confirm the impact on the QoL post-SOHL diagnosis.</p><p><strong>Results:</strong> The HHIA scores obtained were 84% and 50% for P1 and P2, respectively. Key themes that emerged from the interviews revealed that communication difficulties mostly impacted the QoL, which in turn influenced their mental and social well-being. Aural rehabilitation was perceived as ineffective support, thus the inability to reduce the impact on the QoL post-SOHL diagnosis.</p><p><strong>Conclusion:</strong> The integrated findings indicated the impact on the QoL post-SOHL diagnosis. Convergent parallel methods should be considered by researchers to understand rare auditory pathologies and their impact on the QoL.</p><p><strong>Contribution:</strong> Person-centred care (PCC) and family-centred care (FCC) are facilitators of counselling that audiologists can employ as QoL management strategies post-SOHL diagnosis.</p>2024-02-16T06:00:00+01:00Copyright (c) 2024 Liepollo Ntlhakana, Sabeehah Hamidhttps://sajcd.org.za/index.php/sajcd/article/view/970Tube feeding in advanced dementia: Insights from South African speech-language therapists2024-03-01T13:39:18+01:00Danette Pullendbruwer1@gmail.comBhavani S. Pillaybhavani.pillay@up.ac.zaEsedra Krügeresedra.kruger@up.ac.za<p><strong>Background:</strong> Speech-language therapists (SLTs) may recommend tube feeding even with minimal research evidence of its effectiveness, and an understanding of SLTs’ perceived practices is warranted.</p><p><strong>Objectives:</strong> To qualitatively describe a sample of South African SLTs’ perceived practices regarding feeding tube placement in people with advanced dementia.</p><p><strong>Method:</strong> Semi-structured online interviews were conducted via Microsoft Teams. Eight South African SLTs with a particular interest in advanced dementia, in public and private settings, were recruited. Data were analysed using inductive reflexive thematic analysis.</p><p><strong>Results:</strong> Three main themes were identified: (1) factors influencing SLTs’ decisions for feeding tube placement in people with advanced dementia; (2) nature of clinical setting and SLTs’ decision-making and (3) SLTs’ considerations to improve management of people with advanced dementia. Existing local palliative care guidelines were not employed in decisions about tube feeding. Most participants did not recommend tube feeding during end-of-life care. Perceived burden of care influenced participants’ decisions about tube feeding.</p><p><strong>Conclusion:</strong> Speech-language therapists in South Africa likely have an increased reliance on clinical experience rather than recent research and guidelines for decisions about feeding tube placement. Findings accentuate the importance of clinical supervision, mentoring and continuous professional development in the workplace. The findings are an urgent call to action to improve SLTs’ overall practices and ethical service delivery for people with advanced dementia and their families.</p><p><strong>Contribution:</strong> Factors and needs regarding SLTs’ decision-making about feeding tubes in people with advanced dementia are highlighted.</p>2024-02-12T06:00:00+01:00Copyright (c) 2024 Bhavani Pillay, Danette Pullen, Esedra Krüger